2001
Subject: CJD vs vCJD ('chosen ones') and why sporadic CJD will stay just that, 'unknown'...
Date: Sun, 18 Feb 2001 11:22:27 -0800
From: "Terry S. Singeltary Sr." Reply-To: Bovine Spongiform Encephalopathy
To: mhtml:%7B33B38F65-8D2E-434D-8F9B-8BDCD77D3066%7Dmid://00000208/!x-usc:mailto:BSE-L@uni-karlsruhe.de
######### Bovine Spongiform Encephalopathy #########
Greetings All,
I hope you don't mind, but for the next few days i will pass along some documents i think some of you may find of interest. for those of you that do not wish to read, please just delete. some may even have these documents.
what i wish to try and show, is that some 20 years into this, and we are no further along in the science of TSEs, than we were 20 years ago, AND WHY.
i still believe 'in the bottom of my heart' that somewhere, in some place and time, either in a room, a walk in a park, or over the phone, somewhere it was said,
'this can/will never happen'
'it will stay unknown'
'only the chosen ones'
i believe that that this was collaborated between more than just one Country, and it was agreed,
'this can/will never happen'.
for now, i have no proof of this, but over time i am putting together documents between Country's that could show just this. As time goes by, more documents may appear. so, i feel the 'smoken gun' is out there, somewhere, and hopefully someone, somehow, will send this to me, as my biggest goal is to shove this sporadic CJD where it belongs, and i will leave that to your imagination...
i am going to show a series of letters dating back to 1991, from a death that occurred some years previously from a confirmed case of CJD. what i find strange is the correspondence between the victims spouse and the 'medical officials' and the importance of 'NOT' to mention the word Creutzfeldt-Jakob disease in a particular CJD study.
AS well, the questionnaire and the questions that are asked. MIND you this is in 1991, and today, where are we i ask??? WHY are we no further ahead??? i also find it odd, that this Family has still, in the year 2001, after participating in this study, have not had the results of the study they participated in, sent to them???
i still wonder to this day, why we and all the CJD families i have spoken with, why none of us were asked to fill out some sort of questionnaire in regards to the death of our loved ones and CJD and source??? (they must have all the answers)
then, i will pass research documents from the 'prion gods' starting in 1971. again, some of you may have these, and some of you may find this 'boring', so please just delete...
'oh what tangled webs we weave, when all we do is practice to deceive.'
Terry S. Singeltary Sr., Bacliff, Texas USA
===========================================
July 9, 1991
Loma Linda University
A Seventh-day Adventist Institution
xxxxxxx
Dear xxxx:
Creutzfeldt-Jakob Disease Study Neuroepidemiology Section Department of Neurology, Rm 1580 School of Medicine Loma Linda, California 92350
July 9, 1991
The Department of Neurology of Loma Linda University is conducting a multi-state study of Creutzfeldt-Jakob disease to identify risk factors for this disease. This study is federally funded by a grant from the National Institute of Neuroiogic Disorders and Stroke (NINDS) of the National Institutes of Health (NIH).
We recently contacted the Texas Department of Health in Austin and according to their records xxxxx xxxxxx had Creutzfeldt-Jakob disease.
We would like for you to participate in this study of Creutzfeldt-Jakob disease. This research project may be of great benefit in preventing this disease. The success of this study depends upon your participation, which will involve signing a consent form (see enclosed consent form) to release the medical records of xxxx xxxxx and participating in an interview about xxxxx xxxxxx. This interview will be arranged at your convenience. Participation in this study is at no cost to you. If you agree to participate in this study, you are still free to refuse to answer any specific question.
In order to release the medical records of xxxx xxxxx, we need to know the name(s) of the hospital (s) where xxxx xxxxx was examined/diagnosed for Creutzfeldt-Jakob disease. Please fill out the enclosed hospital form indicating where xxxx xxxxx was examined/diagnosed for Creutzfeldt-Jakob disease.
All information supplied will be held in strictest confidence. All information will be pooled and no one person's answers will be identifiable, since code numbers and not names will be used in all analyses.
If you agree to participate in this study, please sign and complete the attached consent form and hospital form and return them to us. A self-addressed, stamped envelope is enclosed for your convenience.
If you have any questions about this study, please feel free to call us collect at (714) 799-2146.
Sincerely,
Carey G. Smoak, MSPH Project Coordinator ===================== Loma Linda University
A Seventh-day Adventist Institution
xxxx xxxx
Dear xxxxx:
Creutzfeldt-Jakob Disease Study Neuroepidemiology Section Department of Neurology, Rm 1580 School of Medicine Loma Linda, California 92350
October 21, 1991
Thank you for agreeing to participate in the Creutzfeldt-Jakob, disease study. Your participation in this important research project is greatly appreciated.
In the next few months we will be contacting you to arrange an interview about xxxx xxxxx. In order to prepare for the interview we need some information regarding xxxx xxxxx.
Please fill out the enclosed form and return it to us. A self-addressed, stamped envelope is enclosed for your convenience. It is very important that you return al1 of this information to us as soon as possible.
If you have any questions, please feel free to call us collect at (714) 799-2146.
Sincerely,
Zoreh Davanipour, DVM, PhD Principal Investigator Associate Professor & Director, Neuroepidemiology Section
Carey G. Smoak, MSPH Project Coordinator
======================
Loma Linda University
A Seventh-day Adventist Institution
xxxx xxxxx
Dear xxxx xxxxx:
Creutzfeldt-Jakob Disease Study Neuroepidemiology Section Department of Neurology, Rm 1580 School of Medicine Loma Linda, California 92350
(714) 799-2146 October 30, 1991
Thank you for agreeing to participate in the Creutzfeldt-Jakob disease study. We are enclosing a summary of the questions that we will be asking you about xxxx xxxxx. All information will be kept confidential. Please think carefully about these questions. This list is provided so that you will have some time to compose your thoughts. Please keep this list for yourself; do not mail it back to us.
Please note that the interviewers are only performing the task of asking questions and do not have any knowledge about study methodology or the disease. In order to maintain high scientific quality of the data and to keep the interviewers unbiased during the interview session, it is absolutely necessary that you _do not use_ the word Creutzfeldt-Jakob disease. You may describe the illness that xxxx xxxxx had, but please _do not use_ the word Creutzfeldt-Jakob disease.
Should you wish to discuss with someone about Creutzfeldt-Jakob disease, please feel free to call us collect at (714) 799-2146 or (714) 799-2152. Thank you.
Sincerely, Zoreh Davanipour, DVM, PhD Principal Investigator Associate Professor & Director, Neuroepidemiology Section
Carey G. Smoak, MSPH Project Coordinator
====================
Loma Linda University
A Seventh-day Adventist Institution
xxxx xxxxxx
Dear xxxxx:
Creutzfeldt-Jakob Disease Study Neuroepidemiology Section Department of Neurology, Rm 1580 School of Medicine Loma Linda, California 92350
November 11, 1991
Thank you for agreeing to participate in the Creutzfeldt-Jakob disease study. Your participation in this important research project is greatly appreciated.
I just wanted to remind you that I have re-scheduled your interview for xxxx xxx.
If you have any questions, please feel free to call me collect at (714) 799-2152.
Sincerely,
Carey G. Smoak, MSPH Project Coordinator
====================
Loma Linda University A Seventh-day Adventist Institution
Creutzfeldt-Jakob Disease Study Neuroepidemiology Section Department of Neurology, Rm 1580 School of Medicine Loma Linda, California 92350
SUMMARY OF QUESTIONS
1. Ethnic, religious and educational background.
2. Lifetime occupational history (specific jobs? when? for how long?)
3. Animal contacts (animals, animal products and sick animals):
a. at work
b. during hobbies or sports (for example hunting, fishing...)
c. as pets
Any contacts with animals: such as sheep, goats, cows, pigs, horses, birds, fish, rodents, rabbits, deer, mink, monkeys, dogs, cats, etc. (types of animals? when? how often?).
Any contacts with animal products: such as brains, eye balls, livers, kidneys, hearts, lungs, spinal cords, skin, wools, furs, stomachs, intestines, meats, muscles, spleens, lymphatics, etc. (types of animal products? when? how often?).
Any contacts with sick animals (including dogs, cats, laboratory animals, birds, large animals) with neurological problems or illnesses (types of sick animals? when? how often?).
Lifetime diet history, until July, 1988: Frequency of meat consumption? How often? Types of meat consumed: such as lamb; beef; sea food; processed meats like sausage, hot dogs, salami...; deer, rabbit; organ meats, etc. Any major changes in diet, such as becoming a vegetarian or being on weight loss programs. How was meat prepared/cooked (such as barbecued/grilled, smoked, fried, broiled, roasted/baked, raw, simmered, etc.)?
5. Major illnesses and causes of death among blood relatives.
6. Medical history:
We are interested in the following medical history for three time periods:
1) birth through age 14,
2) age 15 up to January, 1987, and
3) since January, 1987.
a. major diseases (such as cancer, heart disease, stroke, diabetes, neurological problems, mental problems, infections, etc.)
b. allergies (drug allergies, food allergies, hay fever, hives)
c. accidents and injuries
d. head trauma (when?, age?, how often?, nature of trauma, affected part, severity of trauma, x-rays taken,? CT scan done,? MRI/NMR done,? did loss of consciousness occur?, did loss of memory occur?)
e. other trauma besides head trauma (when?, age?, how often?, nature of trauma, affected part, severity of trauma, x-rays taken,? CT scan done,? MRI/NMR done,? did loss of consciousness occur?, did loss of memory occur?)
f. hospitalizations (reason for hospitalizations), surgeries (types of anesthesia used), sutures (stitches)
g. insects or animal bites or stings
h. eye examinations
i. glaucoma tests (frequency of tests; types of tests, such as: contact tonometry versus non-contact tonomerty/air puff method)
j. childhood illnesses, vaccinations
k. dental work (oral operations & root canal, types of anesthesia used)
7. Medical products:
We are interested in the following medical products for three time periods:
1) birth through age 14,
2) age 15 up to January, 1987, and
3) since January, 1987.
a. heart valve products if undergone heart surgery
b. eye products (contact lenses)
c. eye surgeries (cornea transplant)
d. suture material and collagen used in surgeries
e. hormones: thyroid, pancreatic (insulin and glucagon), human growth hormone, other pituitary hormones (oxytocin, vasopressin, gonadotropins, corticotropin, ACTH), adrenal and ovarian hormones (cortisone, epinephrine, estrogen), specific estrogen hormones called Premarin, Estrace or Estraderm (women only)
f. head, face, neck, brain or pituitary gland operation (when? how often?)
g. blood thinning (anticoagulant) and blood clot dissolving products (heparin, urokinase, alteplase, tissue plasminogen activator/TPA)
h. pancreatic enzymes (pancreatin, trypsin, chymotrypsin)
i. blood transfusions and red blood cell products, transfusions of platelet/plasma products
j. active & passive immunizations (vaccinations)
k. nutritional supplements (vitamins, minerals)
8. Lifetime residential history: where? when? how long? name of cities? zip codes? At each residence identify the source of drinking water: such as city water supply, private well, community well, bottled water. Identify pest control measures at each residence: such as ants, roaches, earwigs, spiders, termites, bees, yellow jackets, mice, rats, etc.
9. Lifetime travel history OUTSIDE of the U.S.A. (where? when? for how long?).
Thank for agreeing to participate in this interview. This page is enclosed for you to make any notes.
=====================
Loma Linda University
A Seventh-day Adventist Institution
Creutzfeldt-Jakob Disease Study Neuroepidemiology Section Department of Neurology, Rm 1580 School of Medicine Loma Linda, California 92350
Neurology Research Center 11175 Mt View Ave, Suite O Loma Linda, CA 92354 909-799-2152 909-799-2149 (fax)
March 21, 1994
xxxx xxxxx
Dear xxxx,
Thank you for participating in the Creutzfeldt-Jakob disease study. Your participation and interest in this important research project are greatly appreciated.
The research project on Creutzfeldt-Jakob disease is progressing very well. We have met and even exceeded our goal of interviewing 100 families who had a relative with Creutzfeldt-Jakob disease. In fact, we have interviewed 119 families who had a relative with Creutzfeldt-Jakob disease. Moreover, we have interviewed 105 control subjects (i.e., non-demented subjects) and are in the process of finding additional control subjects and interviewing them to compare the data with the individuals who had Creutzfeldt-Jakob disease. We expect to complete this research project in a couple of years and then we will analyze all of the information that we have collected. Once research results become available we will share the information with you and your family, if you so indicate on the enclosed form. Of course, no identifying information on any subject will be released.
In the near future we may be contacting you to gather more information on just a few items about your relative who had Creutzfeldt-Jakob disease. For completeness of the data and the success of this scientific research we need you to verify the information on the following page and return it to us in the enclosed self-addressed, stamped envelope.
If you have any questions please feel free to call us collect at (909) 799-2152. Thank you.
Sincerely Yours,
Zoreh Davanipour, DVM, PhD Principal Investigator & Director, Neuroepidemiology Section
Carey G. Smoak, MSPH Project Coordinator
TSS
############ http://mailhost.rz.uni-karlsruhe.de/warc/bse-l.html ############
HISTORY OF USA QUESTIONNAIRE ;
http://cjdquestionnaire.blogspot.com/
Friday, September 4, 2009
FOIA REQUEST ON FEED RECALL PRODUCT 429,128 lbs. feed for ruminant animals may have been contaminated with prohibited material Recall # V-258-2009
http://madcowfeed.blogspot.com/2009/09/foia-request-on-feed-recall-product.html
Saturday, August 29, 2009
FOIA REQUEST FEED RECALL 2009 Product may have contained prohibited materials Bulk Whole Barley, Recall # V-256-2009
http://madcowfeed.blogspot.com/2009/08/foia-request-feed-recall-2009-product.html
Sunday, September 6, 2009
MAD COW USA 1997 SECRET VIDEO
SEE ANOTHER VIDEO THAT SHOWED IN CANADA, BUT NOT USA, ABOUT ANOTHER USA TSE COVER-UP
MORE BRAINS NOT TESTED PROPERLY, key brain parts missing. ...
http://madcowusda.blogspot.com/2009/09/mad-cow-usa-1997-video.html
SEE THIS DAMNING VIDEO AT BOTTOM OF ;
Monday, July 27, 2009
U.S.A. HIDING MAD COW DISEASE VICTIMS AS SPORADIC CJD ?
http://creutzfeldt-jakob-disease.blogspot.com/2009/07/usa-hiding-mad-cow-disease-victims-as.html
Wednesday, September 9, 2009
Co-existence of scrapie prion protein types 1 and 2 in sporadic Creutzfeldt-Jakob disease: its effect on the phenotype and prion-type characteristics
sCJDMM1-2 should be considered as a separate entity at this time.
Thank you very much !
SEE FULL TEXT ;
http://cjdusa.blogspot.com/2009/09/co-existence-of-scrapie-prion-protein.html
Creutzfeldt-Jakob Disease Surveillance in Texas
http://cjdtexas.blogspot.com/
TSS
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